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Disabled girl's parents defend growth-stunting treatment
Story Highlights
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Parents of severely disabled "pillow angel" say controversial treatment is success
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Girl had hysterectomy, other treatments to stunt her growth
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Parents' blog about "Ashley's treatment" created firestorm of Internet debate
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Expert: No consensus among doctors on whether treatment is appropriate, ethical
By Amy Burkholder
CNN
NEW YORK (CNN) -- It's been a year since the parents of a severely disabled child made public
their decision to submit their daughter to a hysterectomy, breast surgery and drugs to keep the girl
forever small. Today, the couple tell CNN, they believe they made the right decision -- one that
could have a profound impact on the care of disabled children worldwide.
"The 'Ashley treatment' has been successful in every expected way," Ashley's parents told CNN
exclusively in a lengthy e-mail interview. "It has potential to help many others like it helped our
precious daughter."
While unwavering in their belief in the treatment, Ashley's parents continue to insist on anonymity.
In the year since Ashley's parents went public, not only did the hospital that sterilized Ashley admit
it broke Washington state law, but also the doctor who treated Ashley committed suicide.
As scrutiny of the case deepens, so too does the chasm in the medical community: Is it mutilation,
with doctors "playing God" -- or, is stunting growth a liberating option for caregivers and the
disabled children who will need constant care for the rest of their lives?
Ashley is now 10 years old and, at 4 feet 5 inches tall, has achieved her full height and weight, 63
pounds. The treatment permanently closed her growth plates and took more than a foot off her
anticipated height.
"Ashley did not grow in height or weight in the last year, she will always be flat-chested, and she
will never suffer any menstrual pain, cramps or bleeding," say her parents, who felt it important to
publicly address their decision after repeated interview requests, in the hopes of sharing their
experience with other families.
They responded by e-mail only, to protect the family's identity. (
the complete interview)
Ashley's current state -- to them -- is the definition of success.
She was born brain-damaged, with a condition described as static encephalopathy, or cerebral palsy.
One of her doctors described her mental capacity as that of a 6-month-old, dependent upon her
parents to meet every need. She does not walk or talk; she's fed through a tube and wears diapers.
When Ashley was 6, her parents approached Children's Hospital and Regional Medical Center in
Seattle, Washington, for the operations. They believed this would make it easier to cuddle and carry
a child who can do little more than lie propped on a pillow.
Weight and height are the "worst enemy," they write, for children such as Ashley, for whom they've
coined the term "pillow angels."


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